Weblog van een gezin met een HSP kindje

© 2016

Baclofen pomp geplaatst 09-09-2009

Geplaatst op 15-09-2009 00:09 door Marije
Categorieën: Intrathecale Baclofenpomp bij HSP

2 weken geleden nog maar, kregen we bericht dat er voor onze lieverd Pleun een plaatsje vrij was om de baclofen pomp te plaatsen afgelopen donderdag 9 september. We hadden net een week de tijd om alles rondom de ziekenhuisopname te regelen. Maar goed, het positieve is dan weer dat we niet al te lang de tijd hadden ons vooraf druk te gaan maken over de operatie.

Ook deze operatie is ons weer alleszins meegevallen. Het verbaast ons keer op keer hoe snel zo'n klein ventje zo snel herstelt. De operatie duurde in totaal nog geen anderhalf uur. Het pompje is geplaatst in zijn linker onderbuik. Dit in verband met een mogelijke toekomstige ontstoken blinde darm (rechts). Daar kunnen ze dan nog eenvoudig bij. Het slangetje van de pomp loopt via zijn linkerzij naar het ruggemerg. In de rug is ook een incisie gemaakt, waarna ze met een naald het ruggemerg bereiken en zo het slangetje naar het ruggemerg hebben geleid. Vervolgens verbinden ze het slangetje weer met de pomp aan de voorzijde en sluiten ze de wonden.

De eerste 2 dagen moest hij volledig plat in bed blijven liggen. Liefst op de rug, maar zijlig mag ook, als hij zijn bovenlijf en hoofd maar niet kon oprichten. Het is belangrijk de eerste 48 uur te blijven liggen, omdat zo het gaatje in het ruggemerg kan dichten. Als het nog niet dicht is, kan er hersenvocht lekken uit het gaatje in de rug wat zich uit in knallende hoofdpijn en misselijkheid. Onze vent is keurig 2 dagen blijven liggen. Het leek me een grote opgave voor een kind van (bijna) 6 jaar, maar wat paste hij zich goed aan. Zaterdag mocht hij voorzichtig proberen om het bedhoofd te verhogen, dit deden we in etappes van 10 cm en met tussenpozen van ca. 1 uur. Gelukkig bleef hoofdpijn en misselijkheid uit. Op zondag mocht hij al rechtop in de rolstoel zitten en ook dit verliep zonder problemen.

Vandaag, maandag, moest er nog een foto gemaakt worden ter controle van de lokatie van het slangetje. Er was een kans dat het slangetje weer iets gezakt zou zijn. Maar gelukkig zat deze nog keurig op zijn plaats en ... mochten we alweer naar huis! Sinds maandag avond zijn we weer thuis en morgen gaan we genieten van ... zijn 6e verjaardag!

De dosering van de pomp wordt gedurende de ziekenhuisopname voorzichtig opgeschroefd. Dat doen ze met een soort "afstandsbediening" die ze net even boven de lokatie van de pomp houden. In de pomp zit een begindosering van 250 microgram/mililiter baclofen. Toen hij uit de ok kwam, was de pomp gedoseerd om 60 microgram per 24 uur af te geven. Dit bleek nog (veel) te weinig. Vrijdag werd dit opgehoogd naar 80 microgram, zaterdag naar 90, zondag naar 100 en vandaag naar 110 microgram. We merken de ontspanning zichtbaar in zijn onderbenen. Voor het eerst in zijn leven trok Pleun zijn knie omhoog, iets wat onmogelijk was zonder pomp met de spasticiteit die hij had. Hij zit eindelijk zonder spalken met afgeplatte voetjes op de voetenplank van zijn stoel. Iets wat hem voorheen ook niet lukte, dan staken zijn voeten altijd in de lucht boven de plank. We zijn er nog niet helemaal met de dosering en zullen de komende tijd nog frequent naar de revalidatiepoli moeten om de dosering optimaal te laten zijn. Maar alle positieve effecten die we tijdens de proefbehandeling afgelopen januari hebben ervaren, beginnen weer langzaam aan terug te komen.

We weten nu al zeker: dit was een operatie die onze vent een meer ontspannen leven zal geven met alle positieve effecten erbij!

Tot de volgende weblog-keer!



Reacties

Hello!
Geplaatst op 05-02-2016 10:21 door purchase_viagra
Hello!
Geplaatst op 05-02-2016 10:21 door purchase_cialis
Hello!
Geplaatst op 05-02-2016 10:21 door fast
Hello!
Geplaatst op 05-02-2016 10:21 door fast
2016-1-15 leilei
pandora jewelry
michael kors outlet
coach outlet canada
michael kors handbag
nike free runs
nike force 1
burberry outlet online
louis vuitton handbagsdfdfsfdsf
louis vuitton handbags
hermes outlet
nike shoes
air max
cheap jordan shoes
longchamp outlet
fitflops shoes
polo ralph lauren
mcm handbags
tiffany jewelry
burberry outlet
air max 90
juicy couture
michael kors outlet
true religion jeans
louis vuitton pas cher
michael kors handbags
michael kors bags
gucci outlet online
ugg outlet
canada goose jackets
michael kors bags
coach outlet
christian louboutin outlet
toms outlet
louis vuitton outlet
fake oakleys
louis vuitton handbags
michael kors outlet
cheap soccer jerseys
michael kors outlet
coach factory outlet
louis vuitton purses
coach factory outlet
kate spade outlet
true religion
burberry outlet
michael kors outlet
ugg boots for sale
nike store
canada goose jackets
coach factory outlet
ugg boots
ray ban sunglasses
cheap ugg boots
jordan shoes
canada goose uk
hollister co
ugg boots australia
michael kors bags
ray bans
ray ban sunglasses
true religion sale
michael kors handbags
toms shoes
louis vuitton outlet
nike trainers
ugg boots
tommy hilfiger outlet
hermes outlet
michael kors outlet
christian louboutin uk
canada gooses outlet
nike outlet
air max 90
louis vuitton handbags
michael kors handbags
ugg boots outlet
ray ban sunglasses
michael kors outlet
oakley sunglasses
nike roshe run
michael kors outlet
fitflops sale clearance
nike huarache
michael kors handbags
nike air max
coach outlet
coach factory outlet online
cheap oakley sunglasses
kate spade
michael kors outlet
kate spade outlet
moncler jackets
jordan 3s
coach outlet store online
coach outlet online
louis vuitton borse
gucci handbags
cheap jordans
juicy couture
michael kors
north face outlet
ralph lauren
ugg boots outlet
longchamp pas cher
oakey sunglasses wholesale
true religion outlet
coach factory outlet
adidas shoes
polo ralph lauren
oakley sunglasses
mont blanc pens
chaussure louboutin
christian louboutin
ghd hair straighteners
toms outlet
christian louboutin sale
louis vuitton outlet
toms outlet
oakley sunglasses
coach factory outlet online
coach factory outlet online
michael kors handbags
nike sb janoski
louis vuitton outlet
sac longchamp pliage
prada handbags
christian louboutin outlet
michael kors handbags
air jordan homme
louis vuitton outlet stores
michael kors
cheap toms
ugg boots
michael kors outlet online
air jordan shoes
michael kors handbags
cheap jordans
adidas superstars
nike tn pas cher
air max
cheap ray ban sunglasses
coach factory outlet online
jordan pas cher
coach outlet
true religion
mizuno running shoes
coach outlet online
ugg outlet
polo ralph lauren
jordan shoes
coach factory outlet online
abercrombie and fitch
louboutin shoes
ray ban sunglasses
coach outlet online
cheap oakley sunglasses
north face jackets
nike blazers shoes
toms outlet store
kate spade
michael kors bag
nike tn pas cher
micahel kors
hermes belt
michael kors outlet
ghd hair straighteners
kate spade handbags
michael kors handbags
christian louboutin sale
nike cortez shoes
gucci borse
air jordan femme
louis vuitton
mcm handbags
oakley outlet
gucci outlet online
adidas gazelle
air jordan 4
louis vuitton uk
michael kors handbags
coach factory online
ray ban sunglasses
michael kors outlet
true religion jeans
adidas trainers
chi flat iron
coach factorty outlet online
christian louboutin shoes
adidas wings
canada goose uk
ed hardy
marc jacobs handbags
christian louboutin outlet
toms outlet
uggs sale
burberry scarf
cheap ugg boots
jordan retro 8
oakley vault
air jordan shoes
michael kors bags
ralph lauren pas cher
canada goose jackets
moncler jackets outlet
michael kors handbags
nike blazer
ture religion outlet
jordan 3 white cenment
instyler max
tory burch
kate spade outlet
michael kors handbags
fitflops uk
jordan retro 13
cheap uggs
burberry outlet online
michael kors outlet
nike air max
longchamp outlet
toms outlet
cheap jordans
coach outlet
nike air max 95
nike sb dunks
ugg boots
michael kors outlet online
air jordan 8
canada goose jackets
michael kors handbags
barbour uk outlet
burberry outlet
gucci belt
ralph lauren outlet
snapbacks wholesale
toms shoes
ray ban sunglasses
ralph lauren
montblanc pens
toms shoes
ghd straighteners
moncler jackets
jordan retro 4
michael kors outlet online
adidas uk
new balance shoes
ugg australia
nike roshe run
coach outlet online
michael kors handbags
coach factory
ray bans
rolex replica watches
louboutin uk
fitflop sale
adidas superstar
nike running shoes
ray ban wayfarer
kate spade handbags
louboutin pas cher
coach outlet online
kate spade outlet
michael kors handbags
adidas running shoes
canada goose outlet
ray bans
michael kors outlet
michael kors outlet
nike outlet store
nike air max 90
sac longchamp
uggs on sale
coach factory outlet online
true religion outlet
timberland boots
tiffany and co
polo outlet
louis vuitton
coach outlet online
jordan 6s
nike uk
coach outlet online
uggs on sale
michael kors handbags
ed hardy uk
ugg outlet
coach outlet online
burberry outlet
louboutin
coach factory outlet
louis vuitton handbags
coach outlet store online
longchamp soldes
nike uk
michael kors outlet
nike blazers uk
coach outlet online
louboutin outlet
true religion sale
Geplaatst op 15-01-2016 02:22 door leilei3915
I north face,the north face had but bcbg max azria,bcbg dresses one vans,vans schuhe reason, sir, hermes birkin,hermes bags for michael kors outlet online sale,michael kors purses going away by the hilfiger outlet,tommy hilfiger first nike,nike.dk conveyance michael kors uhren,michael kors that I louboutin shoes,christian louboutin shoes could find nike running shoes,free running to take me, and air max,nike air max this tommy hilfiger online shop,tommy hilfiger was burberry outlet online,burberry handbags the fear that converse,converse chucks Van Brandt might discover me long champ,longchamp if I remained timberland boots,timberland shoes in Perthshire. The nike free,nike free 5.0 letter eyeglasses frames,cheap eyeglasses that he tiffany jewelry,tiffany and co had left nike,nike.se on instyler,instyler ionic styler the louis vuitton outlet,louis vuitton outlet online table was ralph lauren,ralph lauren full salomon,salomon schuhe of air max,nike air max expressions of love louis vuitton outlet stores,vuitton handbags and remorse, to say nothing of excuses lulu lemon,lululemon outlet for his jordan retro,jordan shoes infamous northface,north face backpacks behavior to ralph lauren,polo ralph lauren me. gucci outlet,gucci shoes He cheap oakley sunglasses,cheap oakley sunglasses declared michael kors outlet,michael kors bags that he beats headphones,dre beats had been entrapped into air jordan,air jordans a private prada outlet,prada handbags marriage new balance,new balance store with a toms outlet,toms shoes profligate the north face outlet,north face jackets woman when true religion outlet,true religion jeans outlet he was adidas online shop,adidas.de little dre headphones,beats by dre more huarache,nike huarache than air force,nike air force a kate spade bags,kate spade lad. montblanc,mont blanc pens They had lululemon,lulu lemon long michael kors,michael kors outlet since vans,vans shoes separated by common wedding dress,wedding dresses uk consent. When tommy hilfiger,www.tommyhilfiger.nl he nike roshe run,nike roshe first courted me, ugg boots clearance,uggs outlet he nike roshe run,roshe run had every reason michael kors handbags,michaelkors.com to believe kate spade handbags,kate spade outlet that she converse outlet,converse was dead. How he had hollister clothing,hollister clothing store been deceived in this particular, coach outlet,coach black friday and iphone 5s cases,iphone 4s cases how burberry handbags,burberry she michael kors,michael kors v?skor had discovered that ray ban sunglasses outlet,ray ban wayfarer he michael kors outlet online sale,michael kors outlet online had married uggs canada,ugg me, air max thea,air max 90 he had yet longchamp,longchamp handbags to polo ralph,ralph lauren outlet online find ghd,hair straightener out. Knowing her furious temper, he had uggs outlet,ugg boots clearance gone harrods,harrods london away with calvin klein outlet,calvin klein her, as the one oakley,gafas oakley means coach bags outlet,coach factory outlet online of rolex watches,replica watches preventing an pandora,pandora application louis vuitton bags,louis vuitton purses to swarovski crystal,swarovski the shoes outlet,shoes on sale justices air max 95,air max 2014 and toms shoes outlet,toms.com a scandal in michaelkors.com,michael kors outlet online the neighborhood. In swarovski,swarovski australia a day michael kors outlet,michael kors outlet online sale or ralph lauren,ralph lauren two he red bottom shoes,christian louboutin would purchase nike mercurial,nike mercurial vapor his release rolex watch,rolex replica from michael kors,michael kors her north face backpacks,the north face outlet by an addition coach factory outlet online,coach factory online to the uggs on sale,uggs allowance which she had juicy couture clothings,juicy couture already received from him: he would return prada shoes,prada outlet to me yoga pants,lululemon and take me michael kors,michael kors abroad, longchamp,longchamp taschen out cheap jordans,air jordan shoes of supra shoes,supra footwear the way coach outlet online,coach factory outlet of further annoyance. oakley,oakley I was cheap oakley,cheap oakley sunglasses his wife ugg boots,uggs in the swarovski canada,swarovski sight of Heaven; I cheap michael kors,michael kors bags was the omega watches,replica watches only tory burch shoes,tory burch handbags woman he asics,asics gel had ever loved; and michael kors purses,cheap michael kors so chanel outlet,chanel sunglasses on, and so on.

“Do you tommy hilfiger online,tommy hilfiger online shop now see, louis vuitton,louis vuitton taschen sir, the ray ban,ray ban zonnebril risk that I michaelkors.com,michael kors outlet ran of michael kors outlet,michael kors his discovering burberry handbags,burberry outlet online me if ray-ban sunglasses,ray ban sunglasses I remained nike free trainer 5.0,nike free run in your christian louboutin,red bottoms neighborhood? oakley sunglasses,oakley The toms.com,toms outlet bare ed hardy,ed hardy clothing thought bride dresses,wedding dresses of tory burch handbags,tory burch sandals it jimmy choo outlet,jimmy choo made my hermes belt,hermes birkin flesh creep. nike shoes,nike outlet store I was nike store,nike.com determined never coach factory,coach outlet again to see the man who hollister kids,hollister co had so tory burch sale,tory burch shoes cruelly deceived abercrombie and fitch,abercrombie me. burberry sale,burberry outlet I rolex watches,watches am in baseball jerseys,jerseys from china the same mind still nike roche,roche runray ban wayfarer,cheap ray ban with this difference, louis vuitton outlet online,louis vuitton outlet stores that I might ray ban sunglasses,ray ban sunglasses outlet consent to polo ralph lauren,ralph lauren online see chanel sunglasses,chanel purses him, tiffany canada,tiffany if I could be positively timberland outlet,timberland boots assured first oakley sunglasses,oakley sunglasses cheap of basketball shoes,cheap basketball shoes the oakley sunglasses outlet,cheap oakley death of insanity schedule,insanity calendar his wife. uhren shop,uhren That boutique clothing,clothing websites is not rayban,ray ban likely abercrombie kids,abercrombie fitch to happen. Let ferragamo,salvatore ferragamo me get on with moncler outlet,moncler outlet online my letter, and tell you what I did on my michael kors bags,michael kors outlet arrival in Edinburgh.

“The coachman recommended longchamp outlet,long champ me adidas,adidas superstar to gucci belts,gucci handbags the oakley,oakley house in coach outlet store online,coach outlet store the michael kors bags,michael kors outlet Canongate where ugg,ugg australia you found me woolrich outlet,woolrich clearance lodging. I wrote the juicy couture handbags,juicy couture clothings same lululemon,lululemon australia day to cheap eyeglasses,cheap glasses relatives ferragamo shoes,ferragamo of my giuseppe zanotti,giuseppe shoes father, true religion jeans women,true religion living in pandora jewelry,pandora Glasgow, true religion jeans outlet,cheap true religion to kate spade outlet,kate spade outlet online tell them where I michael kors handbags,michael kors outlet online sale was, nike roshe run,roshe run and louboutin shoes,louboutin in ugg australia,uggs outlet what hogan,hogan a forlorn position I mac makeup,maccosmetics.com found coach factory outlet,coach bags myself.

“I burberry outlet online,burberry handbags was answered celine outlet,celine handbags by louis vuitton,louis vuitton outlet return of burberry outlet,burberry outlet online post. The head north face outlet,the north face of reebok,reebok the red bottom shoes,louboutin shoes family christian louboutin,louboutin outlet and thomas sabo,thomas sabo his north face,north face outlet wife requested me giuseppe zanotti sneakers,giuseppe zanotti to refrain polo outlet online,polo ralph lauren outlet from visiting them michael kors,michael kors australia in prada sunglasses,prada outlet Glasgow. nike factory,nike outlet They had chi flat iron,flat iron business bebe outlet,bebe dresses then lululemon,lululemon canada in nike soccer shoes,soccer shoes hand which would barbour jackets outlet,barbour outlet take polo ralph lauren outlet online,ralph lauren factory store them to tommy hilfiger outlet,tommy hilfiger outlet stores Edinburgh, and I might air max,nike air max expect horloges,rolex to thomas sabo,thomas sabo uk see them abercrombie,abercrombie and fitch both abercrombie and fitch kids,abercrombie.com with the least oakley sunglasses cheap,oakley sunglasses outlet possible delay.

“They arrived, as they had promised, toms shoes,toms shoes outlet and they michael kors outlet online sale,michael kors purses expressed themselves civilly abercrombie fitch,abercrombie and fitch kids enough. Moreover, mizuno,mizuno running shoes they designer handbags,replica handbags did huarache,huaraches certainly lend me a small nike,zapatillas nike sum pandora bracelet,pandora rings of money when salvatore ferragamo,ferragamo shoes they found how air max,air max shoes poorly adidas online shop,adidas shoes my bcbg max,bcbg max azria purse michael kors outlet online,michael kors outlet online sale was mcm backpack,mcm backpack outlet furnished. wholesale handbags,designer handbags But north face canada,the north face I michael kors outlet online sale,michael kors bags don’t think either husband or wife felt much for me. easton bats,softball bats They hermes birkin bag,hermes outlet recommended beats by dre headphones,beats audio me, louis vuitton purses,louis vuitton at omega,relojes especiales parting, vans shoes,vans outlet to apply to my babyliss flat iron,babyliss father’s nike air max,nike air max 2015 other hollister clothing store,hollister kids relatives, living in England. I may gucci shoes,gucci shoes outlet be doing vuitton handbags,louis vuitton handbags them swarovski crystal,swarovski jewelry an injustice, burberry outlet online,burberry handbags but polo ralph,polo ralph lauren I fancy tory burch,tory burch sale they pandora charms,pandora bracelets were eager ray ban,rayban to nike air max,air max get me (as gucci shoes uk,gucci shoes the nike roshe run,nike roshe common new balance,new balance phrase gucci shoes outlet,gucci mens shoes is) off their gucci mens shoes,gucci belts hands.

“The day when nike shoes,nike outlet the departure ralph lauren outlet,polo ralph of my relatives hollister co,hollister left me cheap ray ban,ray ban outlet friendless was also gucci,gucci the uggs,ugg boots day, ralph lauren outlet online,polo ralph lauren outlet online sir, louboutin shoes,louboutins when converse sneakers,converse outlet I had that dream or air jordan retro,jordans for sale vision of polo ralph lauren,ralph lauren outlet you which ugg boots,ugg boot,uggs outlet I have pandora charms,pandora already abercrombie.com,abercrombie related. I tiffany,tiffany und co lingered on swarovski online shop,swarovski at levis outlet,levis outlet store the louboutin shoes,louboutin house in tommy hilfiger canada,hilfiger the Canongate, partly because the moncler jackets outlet,moncler women jackets landlady adidas zx,adidas neo was kind to swarovski jewelry,swarovski crystal me, partly because cheap barbour jackets,barbour mens jackets I burberry,burberry uk was ray ban,rayban so depressed by nike factory outlet,cheap nike shoes my nike outlet,nike online position that I really did veneta,bottega not new balance store,new balance shoes know new balance shoes,new balance what chanel,coco chanel to beats by dr dre,beats by dre do next.

“In tommy hilfiger outlet stores,hilfiger outlet this polo ralph lauren outlet,ralph lauren wretched condition you discovered louis vuitton canada,louis vuitton me on prada handbags,prada sunglasses that favorite walk oakley vault,oakley sunglasses of p90x3,p90x workout schedule mine ray bans,ray-ban sunglasses from Holyrood rolex replica,fake rolex to ugg boots,uggaustralia.com Saint Anthony’s Well. longchamp handbags,longchamp outlet Believe me, jordan retro 11,jordan release dates your nfl jerseys,baseball jerseys kind interest pandora jewellery australia,pandora jewellery in my prada,prada fortunes has not been thrown ugg australia,ugg away ray ban outlet,ray bans on retro jordans,cheap jordans an louis vuitton handbags,louis vuitton bags ungrateful woman. I north face jackets,north face could ask Providence chanel purses,chanel for oakley store,oakley prescription no greater adidas,adidas.se blessing mcm backpack outlet,mcm bags than to find tiffany and co,tiffany jewelry a omega watches,replica watches brother and a ugg australia,uggs friend in you. You have uggs,ugg australia yourself destroyed maccosmetics.com,mac cosmetics that hope cheap coach purses,coach purses by what you adidas shoes,adidas said and nike uk,nike store did the north face,northface when tiffany,tiffany and co we were together coach outlet store,coach handbags outlet in adidas.nl,adidas sneakers the louis vuitton,louis vuitton australia parlor. I don’t blame you: purses and handbags,wholesale handbags I am afraid my manner (without my coach outlet,coach outlet online knowing it) might nike id,nike.de have roshe,roshes seemed easton bats,baseball bats to give you some cheap true religion,true religion jeans women encouragement. jerseys from china,nba jerseys I hollister,abercrombie am ralph lauren polo,polo ralph lauren outlet only sorry — marc jacobs handbags,marc jacobs handbags very, nike air max 90,nike air very burberry,burberry online shop sorry — to have no air jordan shoes,air jordan retro honorable gucci handbags,gucci outlet choice left new balance,new balance but never to michael kors bags,michael kors handbags see you again.

“After ralph lauren factory store,ralph lauren polo much thin jordans,air jordan king, I have free running,free run made hollister online shop,hollister online shop deutschland up my mind to puma online shop,puma speak
Geplaatst op 21-11-2015 01:49 door wlp

Thanks for post this helpful post - Please visit for More information about:
http://www.top9th.in/packers-and-movers-pune/
http://www.top9th.in/packers-and-movers-noida/
http://www.top9th.in/packers-and-movers-chennai/
http://www.top9th.in/packers-and-movers-kolkata/
http://www.top9th.in/packers-and-movers-ahmedabad/
http://www.top9th.in/packers-and-movers-surat/
Geplaatst op 12-11-2015 07:57 door Priya


Thanks for Nice and Informative Post. This article is really contains lot more information about This Topic
http://www.top9th.in/packers-and-movers-bangalore/
http://www.top9th.in/packers-and-movers-hyderabad/
http://www.top9th.in/packers-and-movers-mumbai/
http://www.top9th.in/packers-and-movers-delhi/
http://www.top9th.in/packers-and-movers-gurgaon/
http://www.top9th.in/
Geplaatst op 12-11-2015 07:53 door Priya

Geplaatst op 12-11-2015 00:25 door without

Geplaatst op 12-11-2015 00:25 door without


Plaats jouw reactie

Je naam (verplicht)
Je e-mail adres (verplicht, wordt niet publiek getoond)
Je website (optioneel)
Je reactie (verplicht)
Bold Italic Underline Hyperlink Horizontal Ruler
(uw browser moet javascript ondersteunen om reacties te kunnen plaatsen)
© 2016