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Geplaatst op 19-07-2013 09:59 door billynoor
CategorieŽn: dagboek

19-07-2013

Ik zit echt in dubio, ik weet even niet meer wat ik moet. Ik loop namelijk steeds meer op mijn tenen. Zelfs op blote voeten, dus zonder evo's loop ik op de voorvoet, mijn hakken komen nauwelijks aan de grond. Probleem is dat ik letterlijk mijn schoenen uitloop. Ik zit er meestal nog net met de hak erin, maar soms loop ik er helemaal uit. Heel lastig en vooral ook heel pijnlijk. Lopen wordt hierdoor wel moeilijk. Ik moet nieuwe schoenen hebben omdat deze letterlijk kapotgelopen zijn, na 2 maanden. Kan kiezen voor dure stevige schoenen (wens van de fysio) maar wie zegt mij dat die ook niet kapot gaan? Misschien gaan ze 2x zo lang mee, maar dan heb ik veel geld uitgegeven voor 4 maanden... Semi-orthopedische schoenen hebben nu niet zoveel zin, voor die klaar zijn.. Bovendien loop ik straks weer anders door de baclofenpomp.
Het grootste probleem in deze is dat de fysio bang is dat ik mijn loopfunctie op deze manier verlies voor ik de pomp heb. Want zelfs mijn armfunctie is achteruit gegaan nadat ik ongeveer 2 weken weinig heb kunnen doen door de opname en vervolgens de lekkage. En dat kost al moeite om die terug te krijgen. Ze is bang dat we de loopfunctie dan ook niet meer terug kunnen halen.

Het is een catch 22 vrees ik. Dure schoenen moeten waarschijnlijk half gesloopt worden omdat er altijd een prachtig goed voetbed in zit, waardoor mijn evo's er dus niet in kunnen, die moeten in een wat vlakker voetbed. Bovendien zijn ze over het algemeen ook iets zwaarder. Net als semi-orthopedische schoenen. Mijn fysio is ervan overtuigd dat het wel mee valt, maar helaas voelt zij mijn benen niet. Bergschoenen zijn ook te zwaar, en hoewel die stevig zijn gaan ook daarin mijn voeten in spits en mijn enkels naar buiten. Dus ik vraag me af of steviger schoenen (maar dan lage anders passen mijn evo's niet) wel helpen.

Nu heeft de fysio het idee dat ik zo even de revalidatiearts kan opbellen en kan overleggen. :) Denk dat de werkelijkheid wat weerbarstiger is. Zij wil ook dat ik nu naar een orthopedisch schoenmaker ga en alvast de schoenen laat aanmeten, dan kunnen ze wel veranderd worden als ik de pomp heb. Geloof niet dat ze beseft hoe het werkt...

Ben er wel mee eens dat er wat moet gebeuren, want dit gaat zo niet. De rondjes worden kleiner, ik blijf wel stug doorlopen hoewel dat misschien ook niet zo verstandig is. Ik heb soms het gevoel dat de botjes in mijn voeten op breken staan, en dat is niet overdreven. De druk op mijn voorvoet is enorm, mede doordat mijn enkels ook nog eens naar buiten drukken en ik op de zijkant van mijn voeten loop en ook nog eens naar binnen met de voeten.

En dan is er nog de vraag bij welke revalidatiearts ik me moet melden. Ben ik helemaal over naar de arts in het Roessingh of kan ik ook nog terecht (of moet ik daar zelfs heen) in Winterswijk bij mijn andere revalidatiearts die mij dus voor de pomp heeft doorgestuurd?

Het wordt niet makkelijker nu ik door het warme weer vrijwel de hele dag met hoofdpijn rondloop, ik heb de energie niet eens om dingen te regelen, of om te wandelen. Ben blij met mijn fysio maar ook blij dat ze 3 weken met vakantie is nu, even geen 'gezeur' meer aan mijn hoofd. Ze bedoelt het goed, maar toch... En dan te bedenken dat ze voor volgende week een hittegolf voorspellen... Zit ik echt op te wachten nu.

Vandaag is het al 3 weken geleden dat ik aangemeld ben voor de pomp! Ongelofelijk, dacht dat het korter was. Verwacht niet eerder dan begin september aan de beurt te zijn, maar de algemene wachtlijst voor neurochirurgische ingrepen in het MST Enschede is 5 weken... Spannende tijd dus, want ik kan nu feitelijk ieder moment opgeroepen worden voor de preoperatieve screening = POS. Dat is meestal 1 of 2 weken van tevoren.



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chenlina20170520
Geplaatst op 20-05-2017 02:58 door chenlina
I am sure many gamers will going to love this one because they will certainly notice the difference when we are playing using fictional background story and using real historical story as the back ground story for the game. domino qiu qiu

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